CRG Scientific Coffee: "What is known about rare diseases?"
13/12/2011
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CRG Scientific Coffee: "What is known about rare diseases?"
Barcelona, Spain
WHAT IS KNOWN ABOUT RARE DISEASES?
Have you heard of Huntington's chorea, the fragile X syndrome or Noonan syndrome?
Do you know what a rare disease is?
Do you know how many types of rare diseases are there?
Did you know that in Spain there are over 3 million people affected by rare diseases?
How are patients and families organized to share questions and concerns?
Which role does research play currently in this context?
Invited speakers:
- Mª de las Mercedes Pastor (Fundación FEDER para la Investigación de Enfermedades Raras)
- Toni Andreu (Institut de Recerca Vall d’Hebron)
- Mara Dierssen (Centre de Regulació Genòmica)
Free of charge - No registration is required - Limited seating
Date: 13th December 2011
Time: 19.00 h
Place: Sala Mirador, Centre de Cultura Contemporània de Barcelona (CCCB). Montalegre 5, Barcelona
For further information: comunicacio@crg.eu
